Comments for Mad Spaz Club http://www.streetsie.com Where there's a wheel there's a way Sun, 05 Sep 2010 10:16:04 +0000 hourly 1 http://wordpress.org/?v=3.0.1 Comment on Super – Supra Pubic Catheters by lily http://www.streetsie.com/supra-pubic-catheters/comment-page-3/#comment-3766 lily Sun, 05 Sep 2010 10:16:04 +0000 http://www.streetsie.com/wp-msc/?p=24#comment-3766 Dear Mad Spazers!! Walt(86) is reeeeeeeeeeeealy angry... as am I... The worst part of the story is the pain for him, unnecessary costs, lost quality time from life, & relatioships down the tubes. Pun intended!! The recommended/usual protocolS, agreed upon by Walt, his case mngr/& boss & me/care mgr: SP CHANGE Every very 3 weeks Walt - who knows the lilteral ins & outs - changes the SP with me assisting. Hospital staff are amazed WE can do this. Who do they think was clever enough to win WWII? Walt is literally sick of the pain during changes + residual bleeding over 7yrs!! He goes @ his own pace, experiences minimal pain & rests when it occurs. There have been no hospitalizations after changing the SP tube. Pay him for this discovery; 3 balloons popped in 1yr, tho we were told, "They NEVER pop." We carry 20FR, etc. in the car on trips, because ER's usually don't have one AND waiting in ER is always beyond time to reinsert - 20 min. Overanxious residents = pain!! 2 URINARY TUBES Walt now has 2 tubes... As the Co's Trouble Shooter, he drove & flew 'round the World selling HVAC. Predictably, there were blood clots in each calf. The AMAZING Greenfield filter was installed. (www it.) 2 days later, during an ultrasound to check it's placement, the technician exclaimed, "Did you recently swallow a football?!!" We all gawked @ a 2" kidney stone, which caused NO pain, for it was stuck in the bottom exit. Dr. said, "In 2 hrs it the kidney would have burst & killed him. Thus the life-long AMAZING Greenfield filter was installed. (www that, too) 3 Halloweens in a row he had a 2" kidney stones stuck in the kidney's exit, thus it did not move - nor hurt. #1 Immediate lithotripsy. #2 Ditto the next Halloween. #3 Walt swore he would not put on his Don Quixote costume, again, until he had the 3rd ultrasounded. BUT this stone shattered, was thus sharp & jagged, & slashed the ureter from kidney to bladder. He's so healthy otherwise that tissue grew up the plastic ureter, requiring more surgeries to clean away The Plug Up. (Interesting... Per Bellruth Naparstek's "Invisible Heros," PTSD can start up when a person is told they will have their 1st surgery. Walt's did!!) BEWARE... PSEUDOMONOUS bacteria sits in the bottom of both bladder & kidneys - like a swamp waiting for mosquitos to breed & do their painful-plus potentially deadly deed!! NEPHROSTOMY (KIDNEY) TUBE Every 8 weeks the neph tube is changed in Angiography. Usual procol:12 wks. But the pseudomonous bacteria apparently did not get the memo. Walt is the exception!! For safety sake, it should be mandatory to stay in hospital over night; saves pain +, $, labor +. Over-due treatments cost: 1st change cost 11 days in hospital. 2nd cost 19 days. Pain? Priceless!!!!!!!!!!!!!! Weird, but since the kidney's exit has grown closed & no longer attaches to his bladder, why did >>EACH<> Q's <> IDEA << Will food-grade diatomacious earth would demolish pseudonomous. I just ordered it. Hopefully, it will dry up lil Pseudy-O as DE does fleas; it dries thus cracks their waxy shells then also dries their bods, too, & internal parasites. BARF!! Even dust the house, car, etc. Just don't get DE in damp areas: eye, nose, etc. URINE RELATED? Walt has sadly quit volunteering as Quality Controller @ the local school for handicapped kids, as he seems to be a Morgellons carrier. I've been diagnosed & apparently have fibers in my urine, tho not blood. 1 of 2 cats seems to have symptoms, too. All 3 of us have passed kidney stones. Dr. Phil mentionned Dr. Eric Klein, Chief of Glickman Urology @ Cleve. Clinic - the whole new huge building - in 1 of 2 Morgellons' segments. Less than 2% of Dr's in World know of "IT," & 1/2 will tell "sufferer's" to see acouple of psychiatrists. MgD manifests itself in many ways, ie, do you itch & scratch sooo much you loose sleep or get infections? Have you picked lil black cotton-like fibers out of your skin? If so, www: colored morgellons photos, morgellons symptoms, cherokeechas.org = the main NON gov't site. . Walt greatly misses volunteering with the kids. So he hopes to find solutionS - especially for the painS, so this will relieve the little boy crushed by the car that jumped the curb!!!!!!!!!!!!!!! Days have turned into nights, again, thanks to the painS, etc. Would appreciate prayers, as we do for y'all!!!!!!!! Lily, for Walt especially ZZZZZZZZZzzzzzz Dear Mad Spazers!!
Walt(86) is reeeeeeeeeeeealy angry… as am I… The worst part of the story is the pain for him,
unnecessary costs, lost quality time from life, & relatioships down the tubes. Pun intended!!
The recommended/usual protocolS, agreed upon by Walt, his case mngr/& boss & me/care mgr:
SP CHANGE
Every very 3 weeks Walt – who knows the lilteral ins & outs – changes the SP with me assisting.
Hospital staff are amazed WE can do this. Who do they think was clever enough to win WWII?
Walt is literally sick of the pain during changes + residual bleeding over 7yrs!!
He goes @ his own pace, experiences minimal pain & rests when it occurs.
There have been no hospitalizations after changing the SP tube. Pay him for this discovery;
3 balloons popped in 1yr, tho we were told, “They NEVER pop.”
We carry 20FR, etc. in the car on trips, because ER’s usually don’t have one
AND waiting in ER is always beyond time to reinsert – 20 min. Overanxious residents = pain!!
2 URINARY TUBES
Walt now has 2 tubes… As the Co’s Trouble Shooter, he drove & flew ’round the World selling HVAC. Predictably, there were blood clots in each calf. The AMAZING Greenfield filter was installed. (www it.) 2 days later, during an ultrasound to check it’s placement, the technician exclaimed, “Did you recently swallow a football?!!” We all gawked @ a 2″ kidney stone, which caused NO pain, for it was stuck in the bottom exit. Dr. said, “In 2 hrs it the kidney would have burst & killed him. Thus the life-long AMAZING Greenfield filter was installed. (www that, too)
3 Halloweens in a row he had a 2″ kidney stones stuck in the kidney’s exit, thus it did not move – nor hurt. #1 Immediate lithotripsy. #2 Ditto the next Halloween. #3 Walt swore he would not put on his Don Quixote costume, again, until he had the 3rd ultrasounded. BUT this stone shattered, was thus sharp & jagged, & slashed the ureter from kidney to bladder.
He’s so healthy otherwise that tissue grew up the plastic ureter, requiring more surgeries to clean away The Plug Up. (Interesting… Per Bellruth Naparstek’s “Invisible Heros,” PTSD can start up when a person is told they will have their 1st surgery. Walt’s did!!)
BEWARE… PSEUDOMONOUS bacteria sits in the bottom of both bladder & kidneys –
like a swamp waiting for mosquitos to breed & do their painful-plus potentially deadly deed!!
NEPHROSTOMY (KIDNEY) TUBE
Every 8 weeks the neph tube is changed in Angiography. Usual procol:12 wks.
But the pseudomonous bacteria apparently did not get the memo. Walt is the exception!!
For safety sake, it should be mandatory to stay in hospital over night; saves pain +, $, labor +.
Over-due treatments cost: 1st change cost 11 days in hospital. 2nd cost 19 days. Pain? Priceless!!!!!!!!!!!!!!
Weird, but since the kidney’s exit has grown closed & no longer attaches to his bladder,
why did >>EACH<> Q’s <> IDEA <<
Will food-grade diatomacious earth would demolish pseudonomous. I just ordered it.
Hopefully, it will dry up lil Pseudy-O as DE does fleas; it dries thus cracks their waxy shells then also dries their bods, too, & internal parasites. BARF!! Even dust the house, car, etc.
Just don't get DE in damp areas: eye, nose, etc.
URINE RELATED?
Walt has sadly quit volunteering as Quality Controller @ the local school for handicapped kids, as he seems to be a Morgellons carrier. I've been diagnosed & apparently have fibers in my urine, tho not blood. 1 of 2 cats seems to have symptoms, too. All 3 of us have passed kidney stones. Dr. Phil mentionned Dr. Eric Klein, Chief of Glickman Urology @ Cleve. Clinic – the whole new huge building – in 1 of 2 Morgellons' segments. Less than 2% of Dr's in World know of "IT," & 1/2 will tell "sufferer's" to see acouple of psychiatrists. MgD manifests itself in many ways, ie, do you itch & scratch sooo much you loose sleep or get infections? Have you picked lil black cotton-like fibers out of your skin? If so, www:
colored morgellons photos, morgellons symptoms, cherokeechas.org = the main NON gov't site.
.
Walt greatly misses volunteering with the kids. So he hopes to find solutionS – especially for the painS, so this will relieve the little boy crushed by the car that jumped the curb!!!!!!!!!!!!!!! Days have turned into nights, again, thanks to the painS, etc.
Would appreciate prayers, as we do for y'all!!!!!!!!
Lily, for Walt especially
ZZZZZZZZZzzzzzz

]]> Comment on Primary and Secondary Hospital Examinations by Graham http://www.streetsie.com/primary-secondary-hospital-examinations/comment-page-1/#comment-3765 Graham Sat, 04 Sep 2010 05:02:11 +0000 http://www.streetsie.com/?p=2581#comment-3765 Hi Jane, Most are familiar with the halo often applied to spinal cord injury patients. Gardner Wells tongs or calipers are often used for unstable incomplete high cervical spine fractures to serve the same purpose, relieve any compression and restrict movement to prevent further damage the spinal cord. Traction is the surest way of stabilizing an incomplete unstable fracture or fracture dislocation, though it?s almost useless in the case of complete permanent quadriplegia. You can see the pins they hammer into the skull about a finger width above each ear, and the tongs, pulley and weight suspended over the end of the bed in the following images (click to enlarge). I talk a little more about my experience as a patient with tongs in this <a href="http://www.streetsie.com/quadriplegia/" rel="nofollow">Quadriplegia ? A View From The Chair</a> article. <a href="http://www.streetsie.com/wp-content/uploads/gardner-wells-tongs-sci.png" rel="nofollow"><img src="http://www.streetsie.com/wp-content/uploads/gardner-wells-tongs-sci.png" height="148px" width="124px" alt="Cervical traction using Gardner Wells tongs" /></a> <a href="http://www.streetsie.com/wp-content/uploads/gardner-wells-tongs.png" rel="nofollow"><img src="http://www.streetsie.com/wp-content/uploads/gardner-wells-tongs.png" height="148px" width="327px" alt="Side view of cervical traction using Gardner Wells tongs" /></a> Hi Jane, Most are familiar with the halo often applied to spinal cord injury patients. Gardner Wells tongs or calipers are often used for unstable incomplete high cervical spine fractures to serve the same purpose, relieve any compression and restrict movement to prevent further damage the spinal cord. Traction is the surest way of stabilizing an incomplete unstable fracture or fracture dislocation, though it?s almost useless in the case of complete permanent quadriplegia. You can see the pins they hammer into the skull about a finger width above each ear, and the tongs, pulley and weight suspended over the end of the bed in the following images (click to enlarge). I talk a little more about my experience as a patient with tongs in this Quadriplegia ? A View From The Chair article.

Cervical traction using Gardner Wells tongs Side view of cervical traction using Gardner Wells tongs

]]> Comment on Primary and Secondary Hospital Examinations by Jane Carmichael http://www.streetsie.com/primary-secondary-hospital-examinations/comment-page-1/#comment-3764 Jane Carmichael Fri, 03 Sep 2010 19:20:17 +0000 http://www.streetsie.com/?p=2581#comment-3764 Wow....you know that Tasha is helping me, but perhaps you won't mind giving me a hand as well....can you tell me why they drove a spike into your head? Is this standard? What does it do? Wow….you know that Tasha is helping me, but perhaps you won’t mind giving me a hand as well….can you tell me why they drove a spike into your head? Is this standard? What does it do?

]]> Comment on Incomplete vs Complete Spinal Cord Injury by Graham http://www.streetsie.com/incomplete-verses-complete-spinal-cord-injury/comment-page-1/#comment-3763 Graham Fri, 03 Sep 2010 10:41:56 +0000 http://www.streetsie.com/?p=2713#comment-3763 Julysunshine: Thankyou for your feedback, as a fellow designer you'll understand when it comes to "pretty" there's no pleasing everyone. Red text on black is www suicide, wanting this website to look unique from most other medical/disability websites we settled on red and black with white and grey text, thrill-seeker colors. We've received both positive and negative color scheme feedback since. Wherever possible I try to remain screen-reader friendly (for the blind) as per W3C standards and considerate of those with visual impairments in general. I pretty much single handedly design, program, manage and pay the costs for this website so you the members can express create, learn and share. If you are willing to contribute your time and experience creating a new theme I am more than happy to facilitate it. Julysunshine: Thankyou for your feedback, as a fellow designer you’ll understand when it comes to “pretty” there’s no pleasing everyone. Red text on black is www suicide, wanting this website to look unique from most other medical/disability websites we settled on red and black with white and grey text, thrill-seeker colors. We’ve received both positive and negative color scheme feedback since. Wherever possible I try to remain screen-reader friendly (for the blind) as per W3C standards and considerate of those with visual impairments in general.

I pretty much single handedly design, program, manage and pay the costs for this website so you the members can express create, learn and share. If you are willing to contribute your time and experience creating a new theme I am more than happy to facilitate it.

]]> Comment on Tegan Crick ? Every Mothers Day by Ryan Seeto http://www.streetsie.com/tegan-crick/comment-page-1/#comment-3758 Ryan Seeto Fri, 03 Sep 2010 06:54:57 +0000 http://www.streetsie.com/wp-msc/?p=140#comment-3758 hey tegan, i doubt you'll actually read this but i guess its worth a shot, but today i sorta met/listened to your story and i just wanted to say how much it actually meant to me that someone so similar to me could have something so tragic happen to them. but you might remember me from today at the that chandler place, i was that dumb shit that said you dyed your hair after everyone realised you were the girl off that add. anyways thanks for the making want to do something with my life and i hope that you enjoy the rest of yours. thanks, ryan (: ps. sorry if i was rambling on a bit its just you really touched me with your story. hey tegan, i doubt you’ll actually read this but i guess its worth a shot, but today i sorta met/listened to your story and i just wanted to say how much it actually meant to me that someone so similar to me could have something so tragic happen to them. but you might remember me from today at the that chandler place, i was that dumb shit that said you dyed your hair after everyone realised you were the girl off that add. anyways thanks for the making want to do something with my life and i hope that you enjoy the rest of yours. thanks, ryan (: ps. sorry if i was rambling on a bit its just you really touched me with your story.

]]> Comment on Incomplete vs Complete Spinal Cord Injury by Julysunshine http://www.streetsie.com/incomplete-verses-complete-spinal-cord-injury/comment-page-1/#comment-3757 Julysunshine Fri, 03 Sep 2010 04:23:31 +0000 http://www.streetsie.com/?p=2713#comment-3757 As a former graphic desiigner, I'd like to make a suggestion for your website. It is very difficult to read the pale and small font on the black background, so if you are lookiing to get folks to appreciate your site, make it more user friendly and remember that you do have some seniors visting your site, which would be vastly improved by making the reading of it much easier. Either change to a bright white font, or forget about a black background. As a former graphic desiigner, I’d like to make a suggestion for your website.
It is very difficult to read the pale and small font on the black background, so
if you are lookiing to get folks to appreciate your site, make it more user
friendly and remember that you do have some seniors visting your site,
which would be vastly improved by making the reading of it much easier.
Either change to a bright white font, or forget about a black background.

]]> Comment on Super – Supra Pubic Catheters by Laurie http://www.streetsie.com/supra-pubic-catheters/comment-page-3/#comment-3756 Laurie Tue, 31 Aug 2010 16:16:26 +0000 http://www.streetsie.com/wp-msc/?p=24#comment-3756 At 47 I did not think I would be shopping in the maternity section for myself again, but looking for pull on pants all I could find was ugly and uglier. A saleswoman suggested I check the maternity section for a more fashionable selection. I was remembering the front panel pants and was likely quite rude. She was persistent, and showed me they now are made with a wide elastic band at the top and come in a good selection of casual to dressy. It is easy to roll the waist below my site depending on my shirt or wear it above and it stays. Pull on pants also allow me to dress myself and more safely pivot from chair to toilet. Any thing that adds to my independence and safety is found treasure. I secretly enjoy the reaction I get in that section of a store from other shoppers, this peri-menapausal woman in a chair must be lost! At 47 I did not think I would be shopping in the maternity section for myself again, but looking for pull on pants all I could find was ugly and uglier. A saleswoman suggested I check the maternity section for a more fashionable selection. I was remembering the front panel pants and was likely quite rude. She was persistent, and showed me they now are made with a wide elastic band at the top and come in a good selection of casual to dressy. It is easy to roll the waist below my site depending on my shirt or wear it above and it stays. Pull on pants also allow me to dress myself and more safely pivot from chair to toilet. Any thing that adds to my independence and safety is found treasure. I secretly enjoy the reaction I get in that section of a store from other shoppers, this peri-menapausal woman in a chair must be lost!

]]> Comment on Super – Supra Pubic Catheters by Joshua Lee http://www.streetsie.com/supra-pubic-catheters/comment-page-3/#comment-3755 Joshua Lee Tue, 31 Aug 2010 00:17:01 +0000 http://www.streetsie.com/wp-msc/?p=24#comment-3755 Advice! hey Mike while i had my SPC i had to switch my trousers to anything with a stretch waistband. the trick i used that soon became a habit is you wear your pants/shorts Under the SPC site. and if you sit or lay down you pull them over the site. gettin in and out of my car was very uncomfortable especially in jeans so i wore jeans only on special occasions. using that trick made everything so much easier and comfortable. Advice! hey Mike while i had my SPC i had to switch my trousers to anything with a stretch waistband. the trick i used that soon became a habit is you wear your pants/shorts Under the SPC site. and if you sit or lay down you pull them over the site. gettin in and out of my car was very uncomfortable especially in jeans so i wore jeans only on special occasions. using that trick made everything so much easier and comfortable.

]]> Comment on Super – Supra Pubic Catheters by Mike http://www.streetsie.com/supra-pubic-catheters/comment-page-3/#comment-3753 Mike Mon, 30 Aug 2010 16:10:03 +0000 http://www.streetsie.com/wp-msc/?p=24#comment-3753 Does anyone else have a problem with pants riding down on SPC? Underwear, pajamas, anything with a waist band will slide down and rest on SPC. I wore suspenders for a month after surgery but have now given up the suspenders. Any advice? Does anyone else have a problem with pants riding down on SPC? Underwear, pajamas, anything with a waist band will slide down and rest on SPC. I wore suspenders for a month after surgery but have now given up the suspenders. Any advice?

]]> Comment on Wheelchair Sex After Spinal Cord Injury by Deb http://www.streetsie.com/spinal-injury-wheelchair-sex/comment-page-1/#comment-3750 Deb Mon, 30 Aug 2010 05:13:44 +0000 http://www.streetsie.com/?p=1775#comment-3750 What a brilliant, well-written article! How guilty we all are of using labels to define ourselves and those we encounter. How do we shake these labels and the damage they create? What a brilliant, well-written article! How guilty we all are of using labels to define ourselves and those we encounter. How do we shake these labels and the damage they create?

]]>